Launch of our MCHS Natural History fundraising campaign
Before we can take treatments to our children, we need to develop a Natural History for MCHS. A Natural History creates baseline scientific measures that ensure the effects of a future treatments can be accurately measured. This is an absolutely critical piece of the process that is required for clinical trial readiness.
MEF2C Foundation & MUSC Launch Program to Develop MEF2C Therapeutics
The MEF2C Foundation, in partnership with the Medical University of South Carolina (MUSC), is thrilled to announce the launch of Pathways To Hope For MEF2C Haploinsufficiency Syndrome, a multi-year program aimed at developing therapeutics specifically targeting MEF2C Haploinsufficiency Syndrome (MCHS)
Pathways to Hope Fundraising - We have done it!
“Our first fundraising campaign to cover the cost of Pathways to Hope in collaboration with MUSC was an enormous success – We have done it!”
Introducing Our New GoFundMe Campaign: Help our tiny warriors find a treatment for MEF2C
We are delighted to announce the launch of our latest endeavor in the battle against MEF2C Haploinsufficiency Syndrome: a brand new GoFundMe campaign that aims to empower progress, inspire hope, and change lives.
Launching into the Journey to Develop Treatments for MEF2C Haploinsufficiency Syndrome
We are thrilled to announce that our organization has achieved a significant milestone in our mission to combat MEF2C Haploinsufficiency Syndrome. We are now officially an incorporated registered charity, paving the way for us to embark on an inspiring journey towards developing treatments for this devastating genetic condition.
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